Getting the most out of your consultation with a doctor for a rare disease is already challenging. Now that we
Read MoreGlobal Gene’s podcast interviewed Ben Munoz recently about his experience as a survivor of an arteriovenous malformation stroke, connecting with
Read MoreIt’s Living with Eagle Syndrome community founding anniversary! Specifically, on the 27th of September in 2010, the community that provides
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Ben’s Friends co-founder and chairman, Ben Munoz, was interviewed recently for the Rare Leader, a regular feature of the Global
Read MoreThe patients who visit our sites have tons of questions on their mind related to their symptoms, which clinic to
Read MoreProviding a safe and supportive community for patients is our top priority at Ben’s Friends. We want members to freely
Read MorePolyneuropathy is often characterised by numbness, tingling sensation, burning pain and even paralysis of the hands and feet which can
Read MoreMembers of Ben’s Friends patient communities can soon take advantage of a state-of-the-art technology that will enable them to manage
Read MoreEagle Syndrome (ES) is a rare condition caused by the elongation of either or both temporal styloid processes, the pointed
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John Stamler, Ben’s Friends’ treasurer and a rare disease survivor himself, had a conversation with Garry Turner in the Episode
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