Erythromelalgia is a rare condition that involves flare ups or episodes of symptoms like redness, intense pain, swelling, and burning
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Fabry is a rare hereditary condition that involves a mutation in the gene called α-galactosidase A (α-Gal A) which enables
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Endometriosis is a condition wherein endometrial tissue—the tissue found inside the uterus—grows outside the uterus, usually in the pelvic area
Read MoreBen’s Friends student interns from the University of Toronto (UofT) organized a seminar titled “An Exploration into Rare Neurological Disorders”
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We did It! Ten Ben’s Friends members traveled for more than 500 miles on foot and afloat to raise awareness
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Clasina Field, a rare disease patient herself believes that her true rehabilitation came in the form of an online support
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Ben’s Friends, our network of patient communities and Rare Disease Review, a medical and health policy journal hosted a miniconference
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Your Ben’s Friends team (including TJ and Seenie) will be hosting a casual get together by the pool for members
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