Acute Disseminated Encephalomyelitis or ADEM is a rare disorder that involves extensive swelling in the brain and spinal cord. It
Read More
Mast cells are white blood cells that are activated when the immune system has to fight against a virus or
Read More
Primary sclerosing cholangitis is a rare disease that affects the bile ducts of the liver. Normally, when the liver cells
Read More
Erythromelalgia is a rare condition that involves flare ups or episodes of symptoms like redness, intense pain, swelling, and burning
Read More
Fabry is a rare hereditary condition that involves a mutation in the gene called α-galactosidase A (α-Gal A) which enables
Read More
Endometriosis is a condition wherein endometrial tissue—the tissue found inside the uterus—grows outside the uterus, usually in the pelvic area
Read MoreBen’s Friends student interns from the University of Toronto (UofT) organized a seminar titled “An Exploration into Rare Neurological Disorders”
Read More
We did It! Ten Ben’s Friends members traveled for more than 500 miles on foot and afloat to raise awareness
Read More
Clasina Field, a rare disease patient herself believes that her true rehabilitation came in the form of an online support
Read More
Ben’s Friends, our network of patient communities and Rare Disease Review, a medical and health policy journal hosted a miniconference
Read More