Oculopharyngeal muscular dystrophy or OPMD is a rare genetic disorder that is characterized by muscle weakness. Symptoms usually manifest in
Read MoreJust like that, 2020 is almost done. I know we say this all the time, but the days seem to
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One of the things the Ben’s Friends team always tries to emphasize in the communities is to never to feel
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Ben’s Friends co-founder and board member Scott Orn was featured recently in John Garrett’s podcast. Titled What’s Your And?, the
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Recent studies show encouraging results of the use of eculizumab in treating myasthenia gravis. Published in the August 2020 issue
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Ben’s Friends has been successfully running online patient communities for thirteen years and it just continues to grow. We are
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Getting the most out of your consultation with a doctor for a rare disease is already challenging. Now that we
Read MoreGlobal Gene’s podcast interviewed Ben Munoz recently about his experience as a survivor of an arteriovenous malformation stroke, connecting with
Read MoreIt’s Living with Eagle Syndrome community founding anniversary! Specifically, on the 27th of September in 2010, the community that provides
Read MoreA recent study conducted by researchers from Stanford University found immunotherapy as a promising treatment for idiopathic pulmonary fibrosis. IPF
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