Nonprofit Snapcast, a podcast that tackles nonprofit management issues, recently featured Ben’s Friends president and co-founder, Ben Munoz. The interview
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Once Upon a Gene recently interviewed Ben Munoz about the story behind the founding of Ben’s Friends, what motivated him
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Chiari Malformation is a rare condition in which herniation (4mm or more) of the Cerebral Tonsils stretches into the opening
Read MoreKeeping Ben’s Friends communities safe and supportive would not be possible without the help of wonderful people who devote their
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Having a rare or chronic illness can make a person feel isolated and lonely. They may have people who definitely
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Oculopharyngeal muscular dystrophy or OPMD is a rare genetic disorder that is characterized by muscle weakness. Symptoms usually manifest in
Read MoreJust like that, 2020 is almost done. I know we say this all the time, but the days seem to
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One of the things the Ben’s Friends team always tries to emphasize in the communities is to never to feel
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Ben’s Friends co-founder and board member Scott Orn was featured recently in John Garrett’s podcast. Titled What’s Your And?, the
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Recent studies show encouraging results of the use of eculizumab in treating myasthenia gravis. Published in the August 2020 issue
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