News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

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4 Things to know to help a friend living with Addison’s Disease

Sascha Gallardo July 21, 2022July 21, 2022

Addison’s Disease is a rare autoimmune condition which attacks the adrenal glands and causes insufficient production of aldosterone and the

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July is Graves’ Disease Awareness Month

Sascha Gallardo July 14, 2022July 14, 2022

Graves’ disease is an autoimmune disorder where the immune system attacks the thyroid, the gland responsible for producing hormones that

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Connect with Ben’s Friends!!

Sascha Gallardo July 1, 2022July 5, 2022

Good news! You can now receive a copy of Ben’s Friends’ quarterly e-newsletter. By subscribing to our newsletter, you will:

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Some of the Autoimmune Rare Diseases in Ben’s Friends List of Communities

Sascha Gallardo July 1, 2022July 1, 2022

The immune system is supposed to protect us by attacking bacteria and viruses. For people who have autoimmune diseases, however,

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Some Things to Understand about Crohn’s Disease

Sascha Gallardo June 18, 2022June 18, 2022

You just found out that your friend has Crohn’s disease, an autoimmune illness that causes inflammation in the digestive tract. 

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What is Fibromyalgia and How Does it Affect a Person’s Work?

Sascha Gallardo June 15, 2022June 15, 2022

Fibromyalgia is a chronic illness that involves widespread pain or pain that can be felt all over the body. It

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The Challenges of Living with Nephrotic Syndrome

Sascha Gallardo May 11, 2022May 11, 2022

Nephrotic syndrome is a condition where proteins, which the body needs, leak into the urine from the blood because of

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People living with ADHD can have a bright future

Sascha Gallardo May 11, 2022May 11, 2022

Attention-Deficit/Hyperactivity or ADHD is characterized by difficulty paying attention, forgetfulness, impulsivity, and hyperactivity, and is usually thought of as a

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What People Living with Erythromelalgia Experience

Sascha Gallardo April 1, 2022April 1, 2022

You might have never heard of it, much less know anyone who suffers from it because it’s a rare disease. 

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Spotlight on our moderator: Norm of the Living with PsA Community

Sascha Gallardo March 16, 2022March 16, 2022

“I can’t imagine finding proper support anywhere else than here.” “…since that first day, the community has been open, friendly,

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Help spread awareness about rare diseases

Sascha Gallardo February 24, 2022February 25, 2022

Imagine suddenly having difficulty swallowing every time you eat. You feel that there’s something stuck in your throat and you

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MakeMeSmile makes donating to Ben’s Friends through AmazonSmile much easier

Sascha Gallardo February 23, 2022February 23, 2022

Donating to Ben’s Friends through the AmazonSmile Charity Lists program is now easier with the help of MakeMeSmile, a free

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Ben’s Friends Self-Advocacy Project for Members

Sascha Gallardo January 31, 2022January 31, 2022

Ben’s Friends to launch Self-Advocacy Project for members Having a rare and chronic illness is definitely not easy. From searching

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Ben’s Friends to launch Ben’s Connections soon

Sascha Gallardo January 31, 2022January 31, 2022

Ben’s Friends communities were created so that people affected by a rare or chronic illness can have a place to

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Spotlight on Lisa and Kashmir: Mother and Daughter’s AVM journey

Sascha Gallardo December 14, 2021December 15, 2021

Ben’s Friends aims to provide patients and caregivers a place where they can connect with others like them. That they

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Even kids and teens can get Psoriatic Arthritis

Sascha Gallardo November 30, 2021November 30, 2021

When we talk about arthritis, we always associate it with getting old. We think of it as something our grandparents

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How to help a friend living with Sjogren’s Syndrome?

Sascha Gallardo July 16, 2021October 11, 2021

Sjogren’s syndrome is a condition that affects the moisture-producing glands. People living with this syndrome usually suffer from dry eyes

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Some tips on how to improve your mental and emotional health

Sascha Gallardo June 7, 2021June 7, 2021

Having a rare or chronic illness can be a source of stress. The different symptoms alone, even the mild pain

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Spotlight on our Moderator: DickD of AVMSurvivors.org

Sascha Gallardo May 24, 2021May 24, 2021

Members find our communities for many reasons. They may be suspecting that they have a condition and are researching what

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How to prepare for a surgery

Sascha Gallardo May 11, 2021October 11, 2021

After so many doctors appointments, you finally have a diagnosis. And as part of the treatment plan, you have to

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An Unspoken Conversation between a TN patient and her daughter

Sascha Gallardo April 28, 2021April 28, 2021

Daughter: Your sudden struggle with trigeminal neuralgia was a turning point in my life. When we finally knew what it

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Preparing for Your Doctor’s Appointment

Sascha Gallardo October 13, 2020October 14, 2020

Getting the most out of your consultation with a doctor for a rare disease is already challenging. Now that we

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News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

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