Ben’s Friends aims to provide patients and caregivers a place where they can connect with others like them. That they
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When we talk about arthritis, we always associate it with getting old. We think of it as something our grandparents
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Rare disease and chronic illness patients need to consult specialists or doctors who are very familiar with their condition. But
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Acute Disseminated Encephalomyelitis or ADEM is a rare disorder that involves extensive swelling in the brain and spinal cord. It
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Mast cells are white blood cells that are activated when the immune system has to fight against a virus or
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You probably have been checking a Ben’s Friends community site for a while. Maybe you have been feeling some symptoms
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Around 45,000 individuals make use of Ben’s Friends communities every month. People suffering from a rare disease are looking for
Read MoreBen’s Friends communities aim to provide patients, as well as their loved ones and caregivers, a supportive place to connect
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Primary sclerosing cholangitis is a rare disease that affects the bile ducts of the liver. Normally, when the liver cells
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Inclusion Body Myositis is a type of myositis that usually affects males above the age of 50. It’s symptoms include
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Sjogren’s syndrome is a condition that affects the moisture-producing glands. People living with this syndrome usually suffer from dry eyes
Read MoreOur Ben’s Friends communities are again getting some new improvements. Members and readers will soon find a new landing page
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Do you know of anyone who is always sleepy? And when I say sleepy, I mean excessive daytime sleepiness. It’s
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Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as
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Erythromelalgia is a rare condition that involves flare ups or episodes of symptoms like redness, intense pain, swelling, and burning
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Having a rare or chronic illness can be a source of stress. The different symptoms alone, even the mild pain
Read MoreMembers find our communities for many reasons. They may be suspecting that they have a condition and are researching what
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After so many doctors appointments, you finally have a diagnosis. And as part of the treatment plan, you have to
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Daughter: Your sudden struggle with trigeminal neuralgia was a turning point in my life. When we finally knew what it
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Getting the most out of your consultation with a doctor for a rare disease is already challenging. Now that we
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Since its founding in 2007, Ben’s Friends has already created 40+ online patient communities. Each one of them is focused
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