Nonprofit Snapcast, a podcast that tackles nonprofit management issues, recently featured Ben’s Friends president and co-founder, Ben Munoz. The interview
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Chiari Malformation is a rare condition in which herniation (4mm or more) of the Cerebral Tonsils stretches into the opening
Read MoreKeeping Ben’s Friends communities safe and supportive would not be possible without the help of wonderful people who devote their
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Oculopharyngeal muscular dystrophy or OPMD is a rare genetic disorder that is characterized by muscle weakness. Symptoms usually manifest in
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Finally we have a covid vaccine. I am amazed at the kick back from the Anti Vaxxers seeing it as
Read MoreJust like that, 2020 is almost done. I know we say this all the time, but the days seem to
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Getting the most out of your consultation with a doctor for a rare disease is already challenging. Now that we
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Once Upon a Gene recently interviewed Ben Munoz about the story behind the founding of Ben’s Friends, what motivated him
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Having a rare or chronic illness can make a person feel isolated and lonely. They may have people who definitely
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Can you believe it? Our Living with Psoriatic Arthritis community has just turned 10 this month. Time flies sooo fast.
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One of the things the Ben’s Friends team always tries to emphasize in the communities is to never to feel
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