Ben’s Friends has been successfully running online patient communities for thirteen years and it just continues to grow. We are
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Getting the most out of your consultation with a doctor for a rare disease is already challenging. Now that we
Read MoreGlobal Gene’s podcast interviewed Ben Munoz recently about his experience as a survivor of an arteriovenous malformation stroke, connecting with
Read MoreIt’s Living with Eagle Syndrome community founding anniversary! Specifically, on the 27th of September in 2010, the community that provides
Read MoreA recent study conducted by researchers from Stanford University found immunotherapy as a promising treatment for idiopathic pulmonary fibrosis. IPF
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Ben’s Friends co-founder and chairman, Ben Munoz, was interviewed recently for the Rare Leader, a regular feature of the Global
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I am blessed enough to be married to my best friend, Elaine. We met at church in 1992, became really
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Results of a genetic study published on June 23 in PLoS Med showed two polycystic ovary syndrome subtypes. “Using an
Read MoreSome news about endometriosis research has been on the headlines lately which could be promising for women suffering from this
Read MoreDelays in getting an accurate diagnosis for a rare disease is very common. Patients would visit a physician, present their
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Just like that, Ben’s Friends already has about a dozen new interns being trained in our brand new (“the virtual
Read MoreWe’re so excited to announce that our community sites will soon have a fresh new look. Compared with the old
Read MoreFibromyalgia is a chronic condition that is characterized by generalized fatigue, musculoskeletal pain, sleep problems, concentration and memory problems (also
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