After so many doctors appointments, you finally have a diagnosis. And as part of the treatment plan, you have to
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Daughter: Your sudden struggle with trigeminal neuralgia was a turning point in my life. When we finally knew what it
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Somebody close to you has recently been diagnosed with SLE, a chronic illness where the immune system attacks healthy tissues.
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Fabry is a rare hereditary condition that involves a mutation in the gene called α-galactosidase A (α-Gal A) which enables
Read MoreIn Two Disabled Dudes podcast episode number 138, Ben shared inspiring lessons he learned from having an AVM stroke, coping
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Endometriosis is a condition wherein endometrial tissue—the tissue found inside the uterus—grows outside the uterus, usually in the pelvic area
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You remember that kid back in 1st grade who got punished for all sorts of things? While everyone in class
Read MoreNonprofit Snapcast, a podcast that tackles nonprofit management issues, recently featured Ben’s Friends president and co-founder, Ben Munoz. The interview
Read MoreKeeping Ben’s Friends communities safe and supportive would not be possible without the help of wonderful people who devote their
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Getting the most out of your consultation with a doctor for a rare disease is already challenging. Now that we
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Once Upon a Gene recently interviewed Ben Munoz about the story behind the founding of Ben’s Friends, what motivated him
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Chiari Malformation is a rare condition in which herniation (4mm or more) of the Cerebral Tonsils stretches into the opening
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