Primary sclerosing cholangitis is a rare disease that affects the bile ducts of the liver. Normally, when the liver cells
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Inclusion Body Myositis is a type of myositis that usually affects males above the age of 50. It’s symptoms include
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Sjogren’s syndrome is a condition that affects the moisture-producing glands. People living with this syndrome usually suffer from dry eyes
Read MoreOur Ben’s Friends communities are again getting some new improvements. Members and readers will soon find a new landing page
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Do you know of anyone who is always sleepy? And when I say sleepy, I mean excessive daytime sleepiness. It’s
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Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as
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Erythromelalgia is a rare condition that involves flare ups or episodes of symptoms like redness, intense pain, swelling, and burning
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Having a rare or chronic illness can be a source of stress. The different symptoms alone, even the mild pain
Read MoreMembers find our communities for many reasons. They may be suspecting that they have a condition and are researching what
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After so many doctors appointments, you finally have a diagnosis. And as part of the treatment plan, you have to
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Daughter: Your sudden struggle with trigeminal neuralgia was a turning point in my life. When we finally knew what it
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Getting the most out of your consultation with a doctor for a rare disease is already challenging. Now that we
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