Once Upon a Gene recently interviewed Ben Munoz about the story behind the founding of Ben’s Friends, what motivated him
Read More
Chiari Malformation is a rare condition in which herniation (4mm or more) of the Cerebral Tonsils stretches into the opening
Read MoreKeeping Ben’s Friends communities safe and supportive would not be possible without the help of wonderful people who devote their
Read MoreJust like that, 2020 is almost done. I know we say this all the time, but the days seem to
Read More
Can you believe it? Our Living with Psoriatic Arthritis community has just turned 10 this month. Time flies sooo fast.
Read More
Ben’s Friends co-founder and board member Scott Orn was featured recently in John Garrett’s podcast. Titled What’s Your And?, the
Read More
Getting the most out of your doctor’s visit for a rare disease can be quite challenging. Needless to say, it
Read MoreGlobal Gene’s podcast interviewed Ben Munoz recently about his experience as a survivor of an arteriovenous malformation stroke, connecting with
Read MoreIt’s Living with Eagle Syndrome community founding anniversary! Specifically, on the 27th of September in 2010, the community that provides
Read More
Ben’s Friends co-founder and chairman, Ben Munoz, was interviewed recently for the Rare Leader, a regular feature of the Global
Read More