Ben’s Friends co-founder and board member Scott Orn was featured recently in John Garrett’s podcast. Titled What’s Your And?, the
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Recent studies show encouraging results of the use of eculizumab in treating myasthenia gravis. Published in the August 2020 issue
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Ben’s Friends has been successfully running online patient communities for thirteen years and it just continues to grow. We are
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Getting the most out of your doctor’s visit for a rare disease can be quite challenging. Needless to say, it
Read MoreGlobal Gene’s podcast interviewed Ben Munoz recently about his experience as a survivor of an arteriovenous malformation stroke, connecting with
Read MoreIt’s Living with Eagle Syndrome community founding anniversary! Specifically, on the 27th of September in 2010, the community that provides
Read MoreA recent study conducted by researchers from Stanford University found immunotherapy as a promising treatment for idiopathic pulmonary fibrosis. IPF
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Ben’s Friends co-founder and chairman, Ben Munoz, was interviewed recently for the Rare Leader, a regular feature of the Global
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Results of a genetic study published on June 23 in PLoS Med showed two polycystic ovary syndrome subtypes. “Using an
Read MoreSome news about endometriosis research has been on the headlines lately which could be promising for women suffering from this
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