Rare disease and chronic illness patients need to consult specialists or doctors who are very familiar with their condition. But especially in the case of rare patients, it’s not that easy to find someone who has many years of experience treating patients who have the same rare disease.
Since Ben’s Friends is a network of patient communities, the majority of our members have consulted various doctors throughout the years that they were looking for a diagnosis as well as when they’re seeking treatment or ways to manage their symptoms.
Information about specialists, hospitals, and clinics that focus on certain rare and chronic diseases is of great value both to our members and to those who are just browsing our community sites. Details are posted in the “Recommend a Doctor” category of each community.
Ben’s Friends only accepts recommendations from members we know and who have attained a certain level of trust in the community. We do not accept advertisements. Trusted members make recommendations based on their personal experience.
We thought that compiling all the links to our Recommend a Doctor categories in a blog would allow us to help even more people. It is important to note, however, that Ben’s Friends does not take responsibility for the inclusion of doctors, hospitals, and clinics on the list. Inclusion of their names does not constitute an endorsement.
If you or anyone you know is affected by any of these rare diseases or chronic illnesses, click on the link below. You may also create an account and ask the members for recommendations in case you don’t find a specialist or clinic near you in the already existing posts.
Acute Disseminated Encephalomyelitis (ADEM)
Arteriovenous Malformation (AVM)
Facial Pain (including Trigeminal Neuralgia and Glossopharyngeal Neuralgia)
Primary Sclerosing Cholangitis (PSC)
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