Ben’s Friends has been successfully running online patient communities for thirteen years and it just continues to grow. We are
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Just like that, Ben’s Friends already has about a dozen new interns being trained in our brand new (“the virtual
Read MoreThe anonymity of members in Ben’s Friends communities allows them to freely share their experiences, doubts and worries. They safely
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In dealing with this whole COVID thing, I have heard over and over that we will move forward based on
Read MoreWhen news about COVID-19 started spreading, one of Ben’s Friends moderators, Don Snyder, wasted no time in compiling and sharing
Read MoreYes, we have a public health crisis. And as rare disease patients, we are “at risk”. Being marginalized as a
Read MoreBen’s Friends created a user-friendly online training facility that makes learning about providing support to patients simple and easy. Dubbed
Read MoreMembers of Ben’s Friends patient communities can soon take advantage of a state-of-the-art technology that will enable them to manage
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In April 2019, FDA held a public meeting to obtain patient and caregiver perspectives on the common issues and symptoms
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We launched our newest community – Living with Idiopathic Pulmonary Fibrosis ( livingwithidiopathicpulmonaryfibrosis.org ) Idiopathic pulmonary fibrosis (IPF) is a
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