Do you know of anyone who is always sleepy? And when I say sleepy, I mean excessive daytime sleepiness. It’s
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Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as
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Erythromelalgia is a rare condition that involves flare ups or episodes of symptoms like redness, intense pain, swelling, and burning
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Having a rare or chronic illness can be a source of stress. The different symptoms alone, even the mild pain
Read MoreMembers find our communities for many reasons. They may be suspecting that they have a condition and are researching what
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After so many doctors appointments, you finally have a diagnosis. And as part of the treatment plan, you have to
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Daughter: Your sudden struggle with trigeminal neuralgia was a turning point in my life. When we finally knew what it
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Somebody close to you has recently been diagnosed with SLE, a chronic illness where the immune system attacks healthy tissues.
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Fabry is a rare hereditary condition that involves a mutation in the gene called α-galactosidase A (α-Gal A) which enables
Read MoreIn Two Disabled Dudes podcast episode number 138, Ben shared inspiring lessons he learned from having an AVM stroke, coping
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