Yes, we have a public health crisis. And as rare disease patients, we are “at risk”. Being marginalized as a
Read MorePolyneuropathy is often characterised by numbness, tingling sensation, burning pain and even paralysis of the hands and feet which can
Read MoreBen’s Friends student interns from the University of Toronto (UofT) organized a seminar titled “An Exploration into Rare Neurological Disorders”
Read MoreBen’s Friends created a user-friendly online training facility that makes learning about providing support to patients simple and easy. Dubbed
Read MoreMembers of Ben’s Friends patient communities can soon take advantage of a state-of-the-art technology that will enable them to manage
Read MoreEagle Syndrome (ES) is a rare condition caused by the elongation of either or both temporal styloid processes, the pointed
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