“Rare Diseases Doesn’t Have Us” – Foot and Float to Raise Awareness Ben Munoz August 15, 2019November 4, 2019 We did It! Ten Ben’s Friends members traveled for more than 500 miles on foot and afloat to raise awareness Read More
Read More Clasina Field Speaks on 10th Orphan Drugs & Rare Diseases Conference Americas Ben Munoz August 5, 2019November 5, 2019 Clasina Field, a rare disease patient herself believes that her true rehabilitation came in the form of an online support Read More