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News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

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Helpful Information about Primary Sclerosing Cholangitis

Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile

Sascha Gallardo November 7, 2023November 7, 2023
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Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients

Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It

Sascha Gallardo September 28, 2023September 28, 2023
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Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families

Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination

Sascha Gallardo September 28, 2023September 28, 2023

Spotlight on our Moderator: Isaiah of the Living with Eagle Community

Sascha Gallardo September 30, 2020February 17, 2021

It’s Living with Eagle Syndrome community founding anniversary! Specifically, on the 27th of September in 2010, the community that provides

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Stanford researchers found possible treatment for idiopathic pulmonary fibrosis

Sascha Gallardo September 29, 2020February 17, 2021

A recent study conducted by researchers from Stanford University found immunotherapy as a  promising treatment for idiopathic pulmonary fibrosis. IPF

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Global Genes’ Rare Daily website features Ben Munoz

Sascha Gallardo September 29, 2020February 17, 2021

Ben’s Friends co-founder and chairman, Ben Munoz, was interviewed recently for the Rare Leader, a regular feature of the Global

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My Wife’s Aneurysm and the People Who Are There For Us

Cindy Payne September 28, 2020October 11, 2021

I am blessed enough to be married to my best friend, Elaine. We met at church in 1992,  became really

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Recent Genetic Study Found Distinct Subtypes of Polycystic Ovary Syndrome

Sascha Gallardo August 31, 2020February 17, 2021

Results of a genetic study published on June 23 in PLoS Med showed two polycystic ovary syndrome subtypes.  “Using an

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Endometriosis Research to Receive Additional Federal Funding in the US

Sascha Gallardo August 31, 2020February 17, 2021

Some news about endometriosis research has been on the headlines lately which could be promising for women suffering from this

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Rare Disease Diagnosis: Difficulties and Advancements

Sascha Gallardo August 31, 2020February 17, 2021

Delays in getting an accurate diagnosis for a rare disease is very common. Patients would visit a physician, present their

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The Ben’s Friends Volunteer Family is Growing!

Clasina Field July 31, 2020November 24, 2020

Just like that, Ben’s Friends already has about a dozen new interns being trained in our brand new (“the virtual

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Ben’s Friends Communities Are Getting a Fresh New Look!

Sascha Gallardo July 29, 2020February 17, 2021

We’re so excited to announce that our community sites will soon have a fresh new look. Compared with the old

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Educational Health Care Website Features Clasina Field

Sascha Gallardo July 22, 2020July 22, 2020

Ben’s Friends Co-Executive Director, Clasina Field, was featured recently in HealthCentral, an online platform that provides healthcare information. Together with

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News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

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