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Helpful Information about Primary Sclerosing Cholangitis

Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile

Sascha Gallardo November 7, 2023November 7, 2023
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Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients

Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It

Sascha Gallardo September 28, 2023September 28, 2023
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Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families

Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination

Sascha Gallardo September 28, 2023September 28, 2023
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What You Need to Know About Invisible Illnesses

Sascha Gallardo October 4, 2022January 31, 2023

You might have had a flu or an illness that made you feel so tired and your whole body ached.

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What is Interstitial Cystitis and What Can You Do to Help Patients?

Sascha Gallardo October 3, 2022January 31, 2023

Imagine having UTI-like symptoms such as frequent urination, pelvic pain, and urgency to urinate but then there’s no bacteria and

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Narcolepsy Is Beyond Sleepiness. How Does it Affect a Patient’s Life?

Sascha Gallardo September 14, 2022April 24, 2023

Narcolepsy, often thought to be a sleep disorder, is in fact a pervasive neurologic disorder with a genetic origin that

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4 Things You Can Do to Help a Friend with Myasthenia Gravis

Sascha Gallardo August 31, 2022April 24, 2023

Myasthenia Gravis is an autoimmune disease involving the nerves and muscles. Instead of fighting infections, the immune system becomes overactive

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Some of the Rare Sleep Disorders

Sascha Gallardo August 30, 2022April 24, 2023

You might have had some problems falling or staying asleep especially on nights when you have a lot on your

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4 Things to know to help a friend living with Addison’s Disease

Sascha Gallardo July 21, 2022July 21, 2022

Addison’s Disease is a rare autoimmune condition which attacks the adrenal glands and causes insufficient production of aldosterone and the

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July is Graves’ Disease Awareness Month

Sascha Gallardo July 14, 2022April 24, 2023

Graves’ disease is an autoimmune disorder where the immune system attacks the thyroid, the gland responsible for producing hormones that

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Connect with Ben’s Friends!!

Sascha Gallardo July 1, 2022July 5, 2022

Good news! You can now receive a copy of Ben’s Friends’ quarterly e-newsletter. By subscribing to our newsletter, you will:

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Some of the Autoimmune Rare Diseases in Ben’s Friends List of Communities

Sascha Gallardo July 1, 2022July 1, 2022

The immune system is supposed to protect us by attacking bacteria and viruses. For people who have autoimmune diseases, however,

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Some Things to Understand about Crohn’s Disease

Sascha Gallardo June 18, 2022April 24, 2023

You just found out that your friend has Crohn’s disease, an autoimmune illness that causes inflammation in the digestive tract. 

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News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

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