It’s simple … go the extra mile and you will stand out from the crowd.
Robin Crow (via jccolyer)

Living With Ataxia - Online Support Group

New member says:

“Hi.Thanks for your welcome,bfn. “

Living With Ataxia - Online Support Group

Life With Lupus - Online Support Group

New member says:

” Thank you! Glad to be here! “

Life With Lupus - Online Support Group

Trials and Tribute: Ben's Friends Rare Diseases Community - February 2012 Monthly Newsletter

jccolyer:

In this issue
Ben’s Friends & Rare Disease Day
Newest Communities
Featured Member of the Month

Ben’s Friends & Rare Disease Day


Rare Disease Day is February 29th (very soon!). We’re pleased to announce that we are now part of a large consortium of non-profits, foundations,…

Living With Erythromelalgia Support Group

New member says:

“Thanks. I’m glad to here. “

Living With Erythromelalgia Support Group

Wonderful blog on Chiari by our friend Alicia - Chiari Life.
Alicia a tremendous advocate for Chiari Malformation Support and is a volunteer moderator. She helps make the network go and brings comfort and support to over 700 people (and growing!). 

Wonderful blog on Chiari by our friend Alicia - Chiari Life.

Alicia a tremendous advocate for Chiari Malformation Support and is a volunteer moderator. She helps make the network go and brings comfort and support to over 700 people (and growing!). 

Trigeminal Neuralgia (TN) - Online Support Group

New member says:

                                           “Thanks

                        so worn out from relentless attacks

        can’t tell you how great it is to find some people that understand

                                 hope all is well with you

                                    kindest regards”

Trigeminal Neuralgia (TN) - Online Support Group  

The world of unusual illnesses and diseases has remained a mystery too long. Thanks for shedding some light and making those who deal with pain/sickness on a daily basis find a community that understands.” - Maria

Living With Erythromelalgia Support Group

New member says:

“Thanks for the welcome, I’ve been looking for an EM forum for some time … finally found this one!”

Living With Erythromelalgia Support Group

Living With Fibromyalgia - Online Support Group

New member says:

“Thank you for helping to make this site possible. I need to get into a support group badly as no one around here has FMS and it’s so difficult to get out of the house sometimes to go to the meetings over an hour away.”

Living With Fibromyalgia - Online Support Group

Living with Psoriatic Arthritis (PsA) - Online Support Group

New member says:

“Thanks for the warm welcome, although i am the only member from the middle east, yet i can see that PsA is treating us all the same :) “

Living with Psoriatic Arthritis (PsA) - Online Support Group

Trigeminal Neuralgia (TN) - Online Support Group

New member says:

“Thank you for the contact. I can see there are a lot of great people on this site, quite amazing really. I am looking forward to sharing any thing I have learned that may help any one else with this condition and also learning what every may help be in dealing with it. I want to THANK YOU and Ben for all of the work that went in to making this site possible and helping so many of us, past, present and future.”

Trigeminal Neuralgia (TN) - Online Support Group

Primary Sclerosing Cholangitis (PSC) - Online Support Group

New member says:

“Thanks! Hope to find parents with some experience on the disease and symptoms.”

Primary Sclerosing Cholangitis (PSC) - Online Support Group

Living with Psoriatic Arthritis (PsA) - Online Support Group

New member says:

“The kindness, compassion and good humor of the group has buoyed me up today while waiting to be accepted as a member.  I very much look forward to getting to know you better.  It’s kind of you to offer a personal welcome to a stranger.  Thanks.”

Living with Psoriatic Arthritis (PsA) - Online Support Group