Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile
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Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It
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Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination
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Executive Summary Von Willebrand Disease (VWD) is a lifelong bleeding disorder that poses both physical and social challenges. For instance,
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For some people, taking a shower, feeling the wind on their skin, or their clothes brushing their legs can bring
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Hereditary Transthyretin (hATTR) Amyloidosis is an inherited condition caused by mutations in the transthyretin gene, leading to the accumulation of
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Recognized as both “butterfly skin” and “the worst disease you’ve never heard of,” epidermolysis bullosa (EB) casts a profound impact
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Living with a chronic illness like psoriatic arthritis entails the constant presence of emotions such as frustration and loneliness. These
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Lupus is a chronic condition that can affect various parts of the body, including joints, skin, kidneys, heart, and more.
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Did you know that there are diseases that can affect almost any part of the body? One of such diseases
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Isn’t it frustrating when you are unwell, experiencing more than the common cold, and the doctors cannot figure out what
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One big study conducted by the Harvard T.H. Chan School of Public Health analyzed the effect of a healthy lifestyle
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Being diagnosed with cancer can have a tremendous impact on the patient’s life. From dealing with the diagnosis emotionally, to
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When talking about heart diseases, we usually think of poor lifestyle choices as causes like smoking, lack of exercise, and
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When you are experiencing symptoms and know that something is wrong, do you settle with the first doctor you meet?
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Addison’s Disease is a rare autoimmune condition which attacks the adrenal glands and causes insufficient production of aldosterone and the
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Good news! You can now receive a copy of Ben’s Friends’ quarterly e-newsletter. By subscribing to our newsletter, you will:
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The immune system is supposed to protect us by attacking bacteria and viruses. For people who have autoimmune diseases, however,
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Imagine suddenly having difficulty swallowing every time you eat. You feel that there’s something stuck in your throat and you
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Having a rare or chronic illness can be a source of stress. The different symptoms alone, even the mild pain
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After so many doctors appointments, you finally have a diagnosis. And as part of the treatment plan, you have to
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Daughter: Your sudden struggle with trigeminal neuralgia was a turning point in my life. When we finally knew what it
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Getting the most out of your doctor’s visit for a rare disease can be quite challenging. Needless to say, it
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Acute Disseminated Encephalomyelitis (ADEM) is a rare disorder marked by severe swelling in the brain and spinal cord. It usually
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Imagine getting up in the morning… …You hit the shower. But while washing your hair, you have to put down
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