Fabry is a rare hereditary condition that involves a mutation in the gene called α-galactosidase A (α-Gal A) which enables
Read MoreIn Two Disabled Dudes podcast episode number 138, Ben shared inspiring lessons he learned from having an AVM stroke, coping
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Endometriosis is a condition wherein endometrial tissue—the tissue found inside the uterus—grows outside the uterus, usually in the pelvic area
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You remember that kid back in 1st grade who got punished for all sorts of things? While everyone in class
Read MoreNonprofit Snapcast, a podcast that tackles nonprofit management issues, recently featured Ben’s Friends president and co-founder, Ben Munoz. The interview
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Once Upon a Gene recently interviewed Ben Munoz about the story behind the founding of Ben’s Friends, what motivated him
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Chiari Malformation is a rare condition in which herniation (4mm or more) of the Cerebral Tonsils stretches into the opening
Read MoreKeeping Ben’s Friends communities safe and supportive would not be possible without the help of wonderful people who devote their
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Having a rare or chronic illness can make a person feel isolated and lonely. They may have people who definitely
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Oculopharyngeal muscular dystrophy or OPMD is a rare genetic disorder that is characterized by muscle weakness. Symptoms usually manifest in
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