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Helpful Information about Primary Sclerosing Cholangitis

Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile

Sascha Gallardo November 7, 2023November 7, 2023
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Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients

Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It

Sascha Gallardo September 28, 2023September 28, 2023
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Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families

Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination

Sascha Gallardo September 28, 2023September 28, 2023
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Ben’s Friends launches its Caregiver Support Community

Sascha Gallardo December 2, 2021December 2, 2021

Since its founding in 2007, Ben’s Friends has already created 40+ online patient communities. Each one of them is focused

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Even kids and teens can get Psoriatic Arthritis

Sascha Gallardo November 30, 2021August 31, 2022

When we talk about arthritis, we always associate it with getting old. We think of it as something our grandparents

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You might find a specialist for your rare disease in our Recommend a Doctor pages

Sascha Gallardo November 1, 2021March 16, 2022

Rare disease and chronic illness patients need to consult specialists or doctors who are very familiar with their condition. But

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Happy 10th Anniversary, Living with ADEM Community!!

Sascha Gallardo and Robin Lynn Poletajev November 1, 2021March 16, 2022

Acute Disseminated Encephalomyelitis or ADEM is a rare disorder that involves extensive swelling in the brain and spinal cord. It

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October 20 is International Mastocytosis & Mast Cell Diseases Awareness Day

Sascha Gallardo October 20, 2021March 16, 2022

Mast cells are white blood cells that are activated when the immune system has to fight against a virus or

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4 tips on how to get the most out of your Ben’s Friends patient community

Sascha Gallardo September 30, 2021March 16, 2022

You probably have been checking a Ben’s Friends community site for a while. Maybe you have been feeling some symptoms

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How Ben’s Friends moderators work as a team

Sascha Gallardo September 29, 2021March 16, 2022

Around 45,000 individuals make use of Ben’s Friends communities every month. People suffering from a rare disease are looking for

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Spotlight on our member: JayCS from the Living with Fibromyalgia community

Sascha Gallardo September 28, 2021March 16, 2022

Ben’s Friends communities aim to provide patients, as well as their loved ones and caregivers, a supportive place to connect

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Happy Anniversary, Living with Primary Sclerosing Cholangitis community!

Mark Wilson (FCMMark) and Sascha Gallardo August 31, 2021March 16, 2022

Primary sclerosing cholangitis is a rare disease that affects the bile ducts of the liver. Normally, when the liver cells

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5 tips on how to help patients better manage inclusion body myositis

Sascha Gallardo August 26, 2021March 16, 2022

Inclusion Body Myositis is a type of myositis that usually affects males above the age of 50. It’s symptoms include

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News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

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