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News From Ben's Friends

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Helpful Information about Primary Sclerosing Cholangitis

Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile

Sascha Gallardo November 7, 2023November 7, 2023
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Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients

Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It

Sascha Gallardo September 28, 2023September 28, 2023
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Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families

Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination

Sascha Gallardo September 28, 2023September 28, 2023
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What is Fibromyalgia and How Does it Affect a Person’s Work?

Sascha Gallardo June 15, 2022April 24, 2023

Fibromyalgia is a chronic illness that involves widespread pain or pain that can be felt all over the body. It

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The Challenges of Living with Nephrotic Syndrome

Sascha Gallardo May 11, 2022April 24, 2023

Nephrotic syndrome is a condition where proteins, which the body needs, leak into the urine from the blood because of

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People living with ADHD can have a bright future

Sascha Gallardo May 11, 2022April 24, 2023

Attention-Deficit/Hyperactivity or ADHD is characterized by difficulty paying attention, forgetfulness, impulsivity, and hyperactivity, and is usually thought of as a

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What People Living with Erythromelalgia Experience

Sascha Gallardo April 1, 2022April 24, 2023

You might have never heard of it, much less know anyone who suffers from it because it’s a rare disease. 

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Spotlight on our moderator: Norm of the Living with PsA Community

Sascha Gallardo March 16, 2022April 24, 2023

“I can’t imagine finding proper support anywhere else than here.” “…since that first day, the community has been open, friendly,

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Help spread awareness about rare diseases

Sascha Gallardo February 24, 2022February 25, 2022

Imagine suddenly having difficulty swallowing every time you eat. You feel that there’s something stuck in your throat and you

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MakeMeSmile makes donating to Ben’s Friends through AmazonSmile much easier

Sascha Gallardo February 23, 2022April 24, 2023

Donating to Ben’s Friends through the AmazonSmile Charity Lists program is now easier with the help of MakeMeSmile, a free

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Ben’s Friends Self-Advocacy Project for Members

Sascha Gallardo January 31, 2022August 31, 2022

Ben’s Friends to launch Self-Advocacy Project for members Having a rare and chronic illness is definitely not easy. From searching

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Ben’s Friends to launch Ben’s Connections soon

Sascha Gallardo January 31, 2022August 31, 2022

Ben’s Friends communities were created so that people affected by a rare or chronic illness can have a place to

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Spotlight on Lisa and Kashmir: Mother and Daughter’s AVM journey

Sascha Gallardo December 14, 2021August 31, 2022

Ben’s Friends aims to provide patients and caregivers a place where they can connect with others like them. That they

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News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

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