Polyneuropathy is often characterised by numbness, tingling sensation, burning pain and even paralysis of the hands and feet which can
Read MoreBen’s Friends student interns from the University of Toronto (UofT) organized a seminar titled “An Exploration into Rare Neurological Disorders”
Read MoreBen’s Friends created a user-friendly online training facility that makes learning about providing support to patients simple and easy. Dubbed
Read MoreMembers of Ben’s Friends patient communities can soon take advantage of a state-of-the-art technology that will enable them to manage
Read MoreEagle Syndrome (ES) is a rare condition caused by the elongation of either or both temporal styloid processes, the pointed
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John Stamler, Ben’s Friends’ treasurer and a rare disease survivor himself, had a conversation with Garry Turner in the Episode
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You must be wondering what Seenie has been doing these days. Well, I’ve been building our Google Classrooms and library
Read MoreI remember talking, not so long ago, with one of our AVM veterans. He has been battling this disease for
Read MoreIn April 2019, FDA held a public meeting to obtain patient and caregiver perspectives on the common issues and symptoms
Read MoreWhen we recently asked our moderators what they love about their role, we got a variety of reactions. Not surprising:
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