Skip to content
News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

Primary Menu
  • Ben’s Friends
  • Ben’s Friends Social Media Kit
Informational Top 3 Latest

Helpful Information about Primary Sclerosing Cholangitis

Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile

Sascha Gallardo November 7, 2023November 7, 2023
Informational Top 3 Latest

Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients

Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It

Sascha Gallardo September 28, 2023September 28, 2023
Informational Top 3 Latest

Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families

Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination

Sascha Gallardo September 28, 2023September 28, 2023

Meet some of the new members at Living with Fibromyalgia

Sascha Gallardo July 15, 2020November 24, 2020

Fibromyalgia is a chronic condition that is characterized by generalized fatigue, musculoskeletal pain, sleep problems, concentration and memory problems (also

Read More

Ben’s Friends inks partnership with ClozTalk

Sascha Gallardo July 1, 2020July 1, 2020

We’re excited to announce that Ben’s Friends has partnered with ClozTalk, a social impact company that helps charities raise people’s

Read More

Spotlight: Ben’s Friends former Intern, Dr. Melissa Jones, MD

Sascha Gallardo June 15, 2020September 29, 2020

The patients who visit our sites have tons of questions on their mind related to their symptoms, which clinic to

Read More

Ben’s Friends Communities Can Help Advance Medical Treatments

Sascha Gallardo June 10, 2020September 29, 2020

The anonymity of members in Ben’s Friends communities allows them to freely share their experiences, doubts and worries. They safely

Read More

Spotlight on Our ModSupport Member: Sharon a.k.a Stoney

Sascha Gallardo June 4, 2020October 14, 2020

Providing a safe and supportive community for patients is our top priority at Ben’s Friends. We want members to freely

Read More

Ben’s Friends Communities Provide Warmth and Friendship during COVID-19 Pandemic

Sascha Gallardo May 21, 2020August 26, 2020

COVID-19 forced millions of people worldwide to stay at home. Governments imposed measures such as physical distancing, stay-at-home, and total

Read More

Worldwide COVID-19 Response: Moving Forward Based on “Science”

TJ (Tom James) May 21, 2020August 26, 2020

In dealing with this whole COVID thing, I have heard over and over that we will move forward based on

Read More

Hanging Out is Helping Out: The Cycle of Helping Each Other at Ben’s Friends

Clasina Field May 21, 2020August 26, 2020

Moderator Don Snyder probes COVID-19 impact on Mast Cell patients

Sascha Gallardo May 16, 2020August 26, 2020

When news about COVID-19 started spreading, one of Ben’s Friends moderators, Don Snyder, wasted no time in compiling and sharing

Read More

Don’t Get Mad, Get Proactive: A Covid-19 Weapon for YOU

Sascha Gallardo March 19, 2020June 10, 2020

Yes, we have a public health crisis. And as rare disease patients, we are “at risk”. Being marginalized as a

Read More
Older Posts
News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

Copyright © All rights reserved. Theme: Minimal Blocks Pro by Thememattic