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News From Ben's Friends

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Helpful Information about Primary Sclerosing Cholangitis

Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile

Sascha Gallardo November 7, 2023November 7, 2023
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Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients

Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It

Sascha Gallardo September 28, 2023September 28, 2023
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Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families

Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination

Sascha Gallardo September 28, 2023September 28, 2023

History Lessons and Immunizations

TJ (Tom James) December 25, 2020April 28, 2021

Finally we have a covid vaccine. I am amazed at the kick back from the Anti Vaxxers seeing it as

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Ben’s Friends 2020 Highlights

Sascha Gallardo December 7, 2020April 19, 2021

Just like that, 2020 is almost done. I know we say this all the time, but the days seem to

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Happy 10th Anniversary, Living with PsA!!

Ben Munoz November 30, 2020February 17, 2021

Can you believe it? Our Living with Psoriatic Arthritis community has just turned 10 this month.  Time flies sooo fast. 

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depression rare disease
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Depression and Autoimmune and Chronic Illnesses

Sascha Gallardo November 18, 2020February 17, 2021

One of the things the Ben’s Friends team always tries to emphasize in the communities is to never to feel

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Vaccine protocols and COVID

TJ (Tom James) November 9, 2020February 17, 2021

Basic protocols never change based on a particular set of circumstances. In the cases of vaccines, those protocols are not

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What’s Your And? Podcast features Scott Orn

Sascha Gallardo November 5, 2020February 17, 2021

Ben’s Friends co-founder and board member Scott Orn was featured recently in John Garrett’s podcast. Titled What’s Your And?, the

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Effects of eculizumab use show promise for patients with myasthenia gravis

Sascha Gallardo November 3, 2020November 3, 2020

Recent studies show encouraging results of the use of eculizumab in treating myasthenia gravis. Published in the August 2020 issue

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Some of Ben’s Friends secrets to maintaining healthy communities

Sascha Gallardo October 26, 2020February 17, 2021

Ben’s Friends has been successfully running online patient communities for thirteen years and it just continues to grow. We are

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Preparing for Your Doctor’s Appointment

Sascha Gallardo October 13, 2020September 14, 2023

Getting the most out of your doctor’s visit for a rare disease can be quite challenging. Needless to say, it

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Ben Munoz shares the story of Ben’s Friends in RARECast

Sascha Gallardo October 6, 2020February 17, 2021

Global Gene’s podcast interviewed Ben Munoz recently about his experience as a survivor of an arteriovenous malformation stroke, connecting with

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News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

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