Skip to content
News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

Primary Menu
  • Ben’s Friends
  • Ben’s Friends Social Media Kit
Informational Top 3 Latest

Helpful Information about Primary Sclerosing Cholangitis

Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile

Sascha Gallardo November 7, 2023November 7, 2023
Informational Top 3 Latest

Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients

Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It

Sascha Gallardo September 28, 2023September 28, 2023
Informational Top 3 Latest

Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families

Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination

Sascha Gallardo September 28, 2023September 28, 2023
Read More

How to help a friend living with Sjogren’s Syndrome?

Sascha Gallardo July 16, 2021August 31, 2022

Sjogren’s syndrome is a condition that affects the moisture-producing glands. People living with this syndrome usually suffer from dry eyes

Read More

Ben’s Friends communities’ site visitors to be welcomed by a new landing page soon

Sascha Gallardo July 15, 2021March 16, 2022

Our Ben’s Friends communities are again getting some new improvements. Members and readers will soon find a new landing page

Read More
Read More

What is narcolepsy and how can you help someone suffering from it?

Sascha Gallardo July 8, 2021March 16, 2022

Do you know of anyone who is always sleepy? And when I say sleepy, I mean excessive daytime sleepiness. It’s

Read More
Read More

Spotlight on our volunteer: Mark of Living with PSC community

Sascha Gallardo June 18, 2021March 16, 2022

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as

Read More
Read More

Happy Anniversary Living with Erythromelalgia Community!!

Sascha Gallardo June 15, 2021March 16, 2022

Erythromelalgia is a rare condition that involves flare ups or episodes of symptoms like redness, intense pain, swelling, and burning

Read More
Read More

Some tips on how to improve your mental and emotional health

Sascha Gallardo June 7, 2021June 7, 2021

Having a rare or chronic illness can be a source of stress. The different symptoms alone, even the mild pain

Read More

Spotlight on our Moderator: DickD of AVMSurvivors.org

Sascha Gallardo May 24, 2021August 31, 2022

Members find our communities for many reasons. They may be suspecting that they have a condition and are researching what

Read More
Read More

How to prepare for a surgery

Sascha Gallardo May 11, 2021October 11, 2021

After so many doctors appointments, you finally have a diagnosis. And as part of the treatment plan, you have to

Read More
Read More

An Unspoken Conversation between a TN patient and her daughter

Sascha Gallardo April 28, 2021April 28, 2021

Daughter: Your sudden struggle with trigeminal neuralgia was a turning point in my life. When we finally knew what it

Read More
Read More

Some things to understand about systemic lupus erythematosus (SLE)

Sascha Gallardo April 27, 2021July 16, 2021

Somebody close to you has recently been diagnosed with SLE, a chronic illness where the immune system attacks healthy tissues. 

Read More
Older Posts
News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

Copyright © All rights reserved. Theme: Minimal Blocks Pro by Thememattic