Skip to content
News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

Primary Menu
  • Ben’s Friends
  • Ben’s Friends Social Media Kit
Informational Top 3 Latest

Helpful Information about Primary Sclerosing Cholangitis

Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile

Sascha Gallardo November 7, 2023November 7, 2023
Informational Top 3 Latest

Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients

Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It

Sascha Gallardo September 28, 2023September 28, 2023
Informational Top 3 Latest

Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families

Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination

Sascha Gallardo September 28, 2023September 28, 2023

“Rare Diseases Doesn’t Have Us” – Foot and Float to Raise Awareness

Ben Munoz August 15, 2019November 4, 2019

We did It! Ten Ben’s Friends members traveled for more than 500 miles on foot and afloat to raise awareness

Read More
Read More

Clasina Field Speaks on 10th Orphan Drugs & Rare Diseases Conference Americas

Ben Munoz August 5, 2019November 5, 2019

Clasina Field, a rare disease patient herself believes that her true rehabilitation came in the form of an online support

Read More

Foot and Float to Build 10 New Communities

Ben Munoz June 28, 2019March 7, 2020

Ten Ben’s Friends Members and Friends are traveling to Glacier National Park This August for five active days to prove

Read More
Read More

Ben’s Friends Co-hosts University of Toronto Rare Disease Conference

Ben Munoz June 28, 2019August 5, 2019

Ben’s Friends, our network of patient communities and Rare Disease Review, a medical and health policy journal hosted a miniconference

Read More
Read More

Ben’s Friends Meet Up

Ben Munoz June 28, 2019July 29, 2019

Your Ben’s Friends team (including TJ and Seenie) will be hosting a casual get together by the pool for members

Read More
Read More

Ben’s Friends Launch IPF Community

Ben Munoz June 28, 2019July 26, 2019

We launched our newest community – Living with Idiopathic Pulmonary Fibrosis ( livingwithidiopathicpulmonaryfibrosis.org ) Idiopathic pulmonary fibrosis (IPF) is a

Read More
Read More

Ben’s Friends Join World Orphan Drug Congress

Ben Munoz June 7, 2019July 27, 2019

Ben’s Friends set up booth for the World Orphan Drug Congress in Washington D.C. the second week of April. Four

Read More
Older Posts
News From Ben's Friends

News From Ben's Friends

Changing patients' lives everyday.

Copyright © All rights reserved. Theme: Minimal Blocks Pro by Thememattic