Clasina Field, a rare disease patient herself believes that her true rehabilitation came in the form of an online support forum at Ben’s Friends. Currently, as co-Executive Director of Ben’s Friends, Clasina shared during her speech how she enjoys the challenge of helping provide safe and supportive virtual communities for people like her. More of her experiences and stories are covered last July 23rd during the topic session, “How to Utilize Peer to Peer Support Groups to Gain Critical “Anecdotal Data””
Along with other delegates, Ben Munoz, co-founder of Ben’s Friends and Tom Lambdin, Co-Executive Director of Ben’s Friends had also joined the panel discussion during the conference. Ben shared how Ben’s Friends had helped thousands of rare disease patients and Tom covers on Ben’s Friends data.