May 2012
62 posts
2 tags
Living with Psoriatic Arthritis (PsA) - Online...
New member says:
“Thank you.”
Living with Psoriatic Arthritis (PsA) - Online Support Group
2 tags
Trigeminal Neuralgia (TN) - Online Support Group
New member says:
“Thanks you. This site is amazing!”
Trigeminal Neuralgia (TN) - Online Support Group
2 tags
Living With Ataxia - Online Support Group
New member says:
“Thank you for the warm welcome. Really hoping to be a big help to others on here.”
Living With Ataxia - Online Support Group
2 tags
Living With Fibromyalgia - Online Support Group
New member says:
“Thank you…Glad to be here.”
Living With Fibromyalgia - Online Support Group
2 tags
Living with Psoriatic Arthritis (PsA) - Online...
New member says:
“Thank you for the welcome.”
Living with Psoriatic Arthritis (PsA) - Online Support Group
2 tags
Living With Fibromyalgia - Online Support Group
New member says:
“Thanks for the warm welcome. Once i get used to the site i will be happy. Many thank you.”
Living With Fibromyalgia - Online Support Group
2 tags
Life With Lupus - Online Support Group
New member says:
“Thanks for the welcome. I will check out the Fibro website as well. All of this is new to me and just finding out today it’s still has not set in. Found this site by chance through a search and so glad I did.”
Life With Lupus - Online Support Group
2 tags
Living With CIDP - Online Support Group
New member says:
“Thank you!”
Living With CIDP - Online Support Group
2 tags
Living With Fibromyalgia - Online Support Group
New member says:
“Thanks! for creating a site like this. I joined the group to find and share tips to improve my life. “
Living With Fibromyalgia - Online Support Group
2 tags
Living With Erythromelalgia Online Support Group
New member says:
“Hi Thanks for the lovely welcome : )”
Living With Erythromelalgia Online Support Group
2 tags
2 tags
Glossopharyngeal Neuralgia (GPN) Support Group
New Member of Glossopharyngeal Neuralgia (GPN) Support Group Says:
“Thank you for inviting me to this support group. I have been busy reading everyone’s comments and feel like it is a great place to gain information and support. I would also like to contribute as time goes on, and hopefully help others in what they may experiencing.”
2 tags
Eosinophilic Esophagitis Support Group →
New Group started for Eosinophilic Esophagitis
1 tag
Living With Erythromelalgia Online Support Group
New member says:
“Thanks for the welcome. Good to know you are all out there.”
Living With Erythromelalgia Online Support Group
2 tags
Life With ADD Taking Off
Ben’s Friends (@bensfriends) support site for ADD (http://www.lifewithadd.org) taking off. Thx to Debbie & Abby for being awesome moderators! #add
2 tags
Living With Ataxia - Online Support Group
New member says:
” Thanks. I hope this is what I need.”
Living With Ataxia - Online Support Group
3 tags
How is a BensFriends.org Patient Community...
A member of our Psoriatic Arthritis patient community recently posted a message titled “Who Needs Facebook…This is the Place for Me.”
http://www.livingwithpsoriaticarthritis.org/forum/topics/who-needs-…
It emphasized to me some important differences between a Facebook support group and a BensFriends.org patient community. Facebook-only support groups are always going...
3 tags
Uncertain About Fibromyalgia →
Wonderful post about Fibromyalgia Support
3 tags
Support Amyloid Disease →
Terrific post by Louisa on Amyloid Support
In My World it is hard to get people to see who I... →
2 tags
Living With Fibromyalgia - Online Support Group
New member says:
“Thank you.”
Living With Fibromyalgia - Online Support Group
“When I hear, “If it isn’t broke don’t fix it” I think, ” If it isn’t broke...”
– John “JC” Colyer (via jccolyer)
3 tags
Do you feel Misunderstood? →
Wonderful post by Abby on the ADD Support site. It starts with:
“Some times in life, we come in contact with those who just don’t get it or understand what we struggle with. I have many times. I guess the ones that hurt the most is family members who sweep it under the rug and hide it. Being misunderstood goes for other folks too, who struggle with other afflictions. “
2 tags
Primary Sclerosing Cholangitis (PSC) - Online...
New member says:
“Thanks, yes I can tell and feel very welcomed. I’m looking forward to exchanging ideas and becoming friends with all here.”
Primary Sclerosing Cholangitis (PSC) - Online Support Group
2 tags
Life With Lupus - Online Support Group
New member says:
“Thank you. I look forward to hearing everyone’s stories.”
Life With Lupus - Online Support Group
2 tags
Living With CIDP - Online Support Group
New member says:
“Thank you! Glad I found this site.”
Living With CIDP - Online Support Group
3 tags
2 tags
Living With Erythromelalgia Online Support Group
New member says:
“Thank you :’-). “
Living With Erythromelalgia Online Support Group
2 tags
Life With Lupus - Online Support Group
New member says:
Thank you, this must be one of the most difficult things our family has had to endure. We are all so scared and confused. Most of the time his think doesn’t seem rational or logical. I know its his Lupus because his brain and body are weak and tired. I love him so very much and I feel so helpless and alone. My family and friends don’t really understand. I appreciate...
2 tags
Life With Lupus - Online Support Group
New member says:
“Thank you for the welcome; i really wasn’t sure how i would get along on the site but its turning out fantastic as of yet. Thank you again for the welcome.”
Life With Lupus - Online Support Group
2 tags
Primary Sclerosing Cholangitis (PSC) - Online...
New member says:
“Thank you so much for the nice welcome.”
Primary Sclerosing Cholangitis (PSC) - Online Support Group
2 tags
Living with Psoriatic Arthritis (PsA) - Online...
New member says:
“Thank you for your kind welcome!”
Living with Psoriatic Arthritis (PsA) - Online Support Group
2 tags
iving with Psoriatic Arthritis (PsA) - Online...
New member says:
“Thanks so much for your welcome to this group, and all you do!!
Living with Psoriatic Arthritis (PsA) - Online Support Group
2 tags
Living with Psoriatic Arthritis (PsA) - Online...
New member says:
“Thanks for your kind welcome.”
Living with Psoriatic Arthritis (PsA) - Online Support Group
2 tags
Living with Psoriatic Arthritis (PsA) - Online...
New member says:
“Thanks so much.”
Living with Psoriatic Arthritis (PsA) - Online Support Group
2 tags
Life With Lupus - Online Support Group
New member says:
“Thank u for welcoming me.”
Life With Lupus - Online Support Group
2 tags
Life With Lupus - Online Support Group
New member says:
“Thank you , I’m glad to be here. I’m looking forward to learning more about lupus. I was just reading some of the doctor’s answers to questions and I’m already feeling better as I see so many people reporting a lot of the same feelings I have and problems I’m dealing with. “
Life With Lupus - Online Support Group
1 tag
Ben’s Friends Patient Community Groups
New member says:
Thank you, it is a pleasure to be a part of your community. I pray you are doing well.
Ben’s Friends Patient Community Groups
2 tags
***TODAY** May 10, 2012 is "World Lupus Awareness...
At Ben’s Friends, our http://www.lifewithlupus.org/ support community is celebrating World Lupus Awareness Day!
jccolyer:
***TODAY** May 10, 201 is “World Lupus Awareness Day”
2 tags
Living With Erythromelalgia Online Support Group
New member says:
“Thank you for the welcome. x”
Living With Erythromelalgia Online Support Group
2 tags
Living With Ataxia - Online Support Group
New member says:
“Thanks - I was hoping to find someone who is in the same situation or has experienced it. It’s such a cruel horrible disease. No one deserves. :-/.”
Living With Ataxia - Online Support Group
May 10, 2012 is " WORLD LUPUS DAY"
Great Lupus Campaign passed on by Life with Lupus Moderator, JC.
jccolyer:
Discontinuing Pain Medication - What Can I Expect... →
2 tags
AVM Survivors Network
AVM Survivor Member Teddi: Thank you. Everyone has been so spectacular - I’m not a bit surprised. I knew I was led to this website for a reason, hope. I love it already.
AVM Survivors Network
2 tags
Living with Psoriatic Arthritis (PsA) - Online...
New member says:
“THANK YOU FOR THE WELCOME!”
Living with Psoriatic Arthritis (PsA) - Online Support Group
2 tags
Living With Fibromyalgia - Online Support Group
New member says:
“Thanks for the welcome. I really hope to get a bit of advice on how to handle the whole situation a bit better, as I am at my wits end at the moment.”
Living With Fibromyalgia - Online Support Group
2 tags
Living with Psoriatic Arthritis (PsA) - Online...
New member says:
“Thank you for welcoming me.”
Living with Psoriatic Arthritis (PsA) - Online Support Group
2 tags
Life With Lupus - Online Support Group
New member says:
“Thanks . I am glad to be here! I want to connect with others that share the same type of diagnosis that I have. I found a lot of people with SLE. But I have not been able to find anyone else that has tumid lupus, which is a form of skin lupus. I have symptons of SLE but test negative for it. The more information that I can arm myself with the better off I will be in...
2 tags
Life With Lupus - Online Support Group
New member says:
“Thank you for your kind words.”
Life With Lupus - Online Support Group
2 tags
Living with Psoriatic Arthritis (PsA) - Online...
New member says:
“Thanks for your welcome! Blessings to you.”
Living with Psoriatic Arthritis (PsA) - Online Support Group